patient-advocacy
5 stories related to this topic, newest first.
The BbcMothers Share Experiences With Placenta Accreta Spectrum Disorder
One hundred mothers have formed a campaign group to highlight placenta accreta spectrum, a life-threatening pregnancy condition. The group is calling for improved awareness, diagnosis and maternity care after many reported being undiagnosed before delivery. Action for Accreta rel…
The BbcFamilies Call for More Research into Progressive Supranuclear Palsy
Families of people diagnosed with progressive supranuclear palsy described the challenges of living with the rare neurological condition and called for greater awareness and research. The disease affects about 5,000 people in the UK and is often initially misdiagnosed as dementia…
Substrate placeholder — needs reviewSheer Health Company Assists Patients with Insurance Claim Denials
A company named Sheer Health helps patients navigate denials of health insurance claims. Seventy-three percent of Americans view delays and denials in medical treatment by insurers as a major problem. The service reviews policies and appeals decisions on behalf of clients for a f…
Substrate placeholder — needs reviewMAHA Advocate Expresses Desire for Restored Trust in Medical Community
A supporter of the Make America Healthy Again (MAHA) movement has written about seeking renewed trust in the medical community. The statement appears in a personal reflection published by STAT News. It highlights ongoing discussions about public confidence in healthcare instituti…
Substrate placeholder — needs reviewFDA Declines to Issue Guidance on Alternative Funding Programs Importing Foreign Drugs
The U.S. Food and Drug Administration has declined a request to provide specific guidance on alternative funding programs that import prescription drugs from overseas. These programs connect patients with affordable medications for critical diseases, though regulators state the i…